Tiny Light Maxxwell
by
Guest Author 
Print This Article
Maxxwell
Tiny Light Maxxwell is definitely a charmer. He knows he’s is cute and loves getting attention. If this toddler blows you a kiss, that means he really likes you.
Maxx was diagnosed in utero at 18 weeks with heart defects – atrioventricular septal defect (large hole between the ventricles and atria) and ventricular septal defect, plus a Mitral Valve leak. Then doctors told his parents Cheryl and Tom the amniocentesis confirmed Down Syndrome.
Related: What is Down syndrome
Within the first six months of his life, Maxx had three heart surgeries. He finally got to go home from the hospital at 6 months, the day before Father’s Day. Maxx may require more surgery in the future and his parents aren’t sure how Down Syndrome will affect his life long-term. They are finding support in the community through various organizations such as the Langley Down Syndrome Resource Group.
Related: Surgery Survival
Maxx will be 3 years old in January and he is pretty much like any other toddler. He loves music and he even knows how to sign for his favorite things. When he wakes up and goes to sleep, he’s always asking for cookies and milk. “We hope Maxx is accepted for who he is and we hope there will always be someone around who can love, support and take care of him.”
Down Syndrome, atrioventricular septal defect, ventricular septal defect, plus a Mitral Valve leak.
For more information go to
Story written by Elaine Yong
Photos by Jenn Di Spirito Photography www.jenndispirito.com
Read More Stories From The Tiny Light Foundation
You May Also Like
- Handling Your Child’s Diagnosis: Six Things Parents Should Do For Themselves
- How Do You Talk to Your Child About Their Diagnosis?
- 8 Ways to be a Great Advocate For Your Family Member With Special Needs
- Coping with the Life You Never Imagined
- Developing Your Own Network
- Miracle Babies What You Need to Know
- I Do Not like Being a Special Needs Parent and That’s OK
- Dad’s Emotional Video Defending Down Syndrome
This post originally appeared on our May/June 2012 Magazine
