Welcome to Holland

Welcome to Holland
I am often asked to describe the experience of raising a child with a disability โ to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. Itโs like thisโฆโฆ
When youโre going to have a baby, itโs like planning a fabulous vacation trip โ to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The Gondolas in Venice. You may learn some handy phrases in Italian. Itโs all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The Stewadess comes in and says, โWelcome to Holland.โ
โHolland?!?โ you say. โWhat do you mean Holland?? I signed up for Italy! Iโm supposed to be in Italy. All my life Iโve dreamed of Italy.โ
But thereโs been a change in the flight plan. The yโve landed in Holland and there you must stay. The important thing is that they havenโt taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. Itโs just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. Itโs just a different place. Itโs slower-paced than Italy, less flashy than Italy. But after youโve been there for a while and you catch your breath, you look aroundโฆ.. and you begin to notice that Holland has windmillsโฆ.and Holland has tulips . Holland even has Rembrandts.
But everyone you know is busy coming and going from Italyโฆand theyโre all bragging about what a wonderful time they had there. And for the rest of your life, you will say โYes, thatโs where I was supposed to go. Thatโs what I had planned.โ
And the pain of that will never, ever, ever, ever go awayโฆ.because the loss of that dream is a very very significant loss.
Butโฆโฆif you spend your life mourning the fact that you didnโt get to Italy, you may never be free to enjoy the very special, the very lovely thingsโฆโฆabout Holland.
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